Bootstrap Case Family Services Directory

The Barnsley Council logo

Children's Continuing Health Care, and transitioning to Adult's Continuing Health Care 

To return to becoming an adult click here

To go back to the homepage click here


What is Continuing Health Care?

Children’s Continuing Care is extra health support when your health needs cannot be met through your GP, hospital or the community

It's usually for Children under 18 who are very ill or have a complex health need because of:

  • a congenital condition
  • a long-term deteriorating or life-limiting condition
  • a disability
  • a serious illness or injury

Read on to see what is meant by some of these terms. 

Congenital condition

This is when you are born with a diagnosed congenital condition that is likely to mean that you will have a continuing care need. Examples of congenital conditions include cleft palate, spina bifida and Down’s syndrome, but there are many more. 

Long-term deteriorating condition

If you have a complex health condition that is getting worse over time.

Life-Limiting conditions 

These are conditions where there isn't a cure yet and the condition might affect how long someone lives. People with life-limiting conditions may need ongoing care when facing their illness. 

Sudden or unexpected need 

This could be after a bad accident or a serious illness.

If this sounds like you, or someone you are looking after, you can read more about Continuing Children's Health Care on this page, if not you can go back to 'becoming an adult' here. 



How do we ask for children's continuing health care?

If you or the child you are looking after fits the criteria, a referral can be made for Children’s Continuing Care by any health professional. It could be your GP, community nurse or any other health professional involved in your care.
A referral can also be made by a social care professional, such as a social worker if you have one.

How do professionals decide if children's continuing healthcare is needed?


When the referral is made a Nurse Assessor will look at the information provided to see if a full assessment is needed. If a full assessment is needed then the Nurse assessor will arrange this with you, your family or carer and the person who referred you.


The assessment will look at the care you are already receiving and the nature of your needs, not a particular condition.

The Nurse Assessor will then take their assessment to a panel of experts who will decide whether Children’s Continuing Healthcare is required. They will use a 'decision support tool' to make sure continuing care is the right pathway.


A decision is usually made within 6-8 weeks from when the assessment takes place.

For Urgent Access via Fast Track:
If you have a rapidly deteriorating condition entering a terminal phase, you might be eligible for urgent access to NHS continuing healthcare through the fast track.


In the fast track, you don't need to complete a checklist or the decision support tool. Instead, a clinician will use the fast track pathway tool to determine your eligibility for NHS continuing healthcare.


How will it support me?

The types of support available through Children’s Continuing Care will be different for every person, but it could include things like 

  • Nursing care
  • Equipment and Assistive Devices
  • Specialised medical equipment such as wheelchairs, ventilators, or communication devices.
  • Adaptations to the home environment to improve accessibility.
  • Psychological and Emotional Support:
  • Coordination of Care
  • Planning for the transition from paediatric to adult healthcare services.
  • Ensuring continuity of care as the child grows into adulthood.

Any package of care package is kept under regular review to ensure your needs continue to be supported, even into adulthood. 




Transitioning from Children's to Adults Continuing Care

The transition from Children's Continuing Healthcare to Adult Continuing Healthcare is an important process that involves careful planning and coordination to ensure a smooth and seamless shift in healthcare services as you become an adult. 

Below is an easy-read guide to what happens, you should talk to those providing your care for more in-depth information, or have questions about how it relates to you. 

Step 1
If you are getting Children’s Continuing Care, a nurse will refer you to the Adult Continuing Care team when you're about 16 or 17.


The Adult’s Continuing Health Care team will assess if you're likely to qualify for Adult’s Continuing Care when you turn 18.

Step 2 
If the checklist shows that you may be eligible, a full assessment will be carried out using the National Decision Support Tool. 
The assessment will help professionals involved in your care to understand your current health and care needs, and any potential changes as you grow up into adulthood.  

Step 3 
A care and support plan may be developed based on the assessment, which takes into account your preferences, goals, and aspirations. You and your family or support network, will take part in the planning process.

The transition from Children's to Adult Continuing Healthcare process thinks about not only the medical aspects but also your overall well-being, independence, and life goals.

You can find more detailed information about the process 
here.

Remember the eligibility criteria for Adult’s Continuing Care are different from Children’s Continuing Care, so there is a chance that you no longer qualify depending on the progress you have made or if the nature of your condition has changed. 






Contact us

Need help?

0800 0345 340 

infofis@barnsley.gov.uk

Find us on Facebook!

Help us improve the Local Offer Website

We hope you've found everything you were looking for. 

Help us improve the Local Offer Website by taking a few moments to complete our Feedback Form 

Worried about a child?

Worried about a child? 

Click here

Barnsley's Virtual Family Hub

💻 Visit the Virtual Family Hub 

Where you'll find information about Family Hubs & Start For Life, Universal Services, Help with childcare costs and childcare providers, leisure groups, holiday clubs and activities and much more!