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National Organisations

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Who can help: National Organisations

The organisations on this page cover a range of specific needs, like autism, dyslexia, downs syndrome and other physical conditions. 

Find information relevant to specific conditions that could make a difference, no matter what you're going through, these National Organisations are here to support you.

The National Autistic Society

The National Autistic Society helps families living with autism. On their website, you can find useful info about autism, tips for everyday issues, and guidance on getting services. They also connect you with an online community for support and provide educational materials to make things easier for families raising children with autism.

They do a lot of work campaigning for improved rights, services and opportunities to help create a society that works for autistic people.

Find out more:

Visit the National Autistic Society Website

Down’s syndrome association

The Downs Syndrome Association helps people with Down's syndrome and their families. They give information, support, and advice to make life better for individuals with Down's syndrome. The goal is to empower them, encourage inclusion, and provide practical help and a supportive community.

Find out more:

Visit the Downs Syndrome Association Website here

The British Dyslexia Association

The British Dyslexia Association (BDA) helps dyslexic people and their families. 

They provide helpful factsheets and guides to help you understand dyslexia, how to spot it and what to do. They also work with the government, schools, and other organisations to raise awareness of dyslexia 

Find out more: 

Visit the British Dyslexia Association Website here

National Deaf Children’s Society

The National Deaf Children’s Society supports families who are growing up with childhood deafness. They raise awareness and campaign for deaf children’s rights, so they have the same opportunities as everyone else. 

Find out more

Visit the National Deaf Children's Society Website here

Cystic Fibrosis Trust

The Cystic Fibrosis Trust are working towards a brighter future for everyone with cystic fibrosis (CF) by funding cutting-edge research and supporting people with the condition and their loved ones every step of the way.

Find out more:

Visit the Cystic Fibrosis Trust website here 


In the UK today there are around half a million children and young people with brain conditions that result in complex medical, educational and social support needs. Cerebra are a charity that helps these children and their families discover a better life together. You can find out more about them on their website

The Royal Society for Blind Children

The Royal Society for Blind Children offers a range of services including emotional support and practical advice for families, opportunities for children and young people to build confidence and skills through activities, and a specialist further education college. You can find more information on their website.

Guide Dogs

Guide Dogs are led by the needs of their customers and deliver services and support tailored to their specific needs.
They offer.
• Canine services
• In-person services
• Online and telephone service
• Influencing and campaigning
You can find out more about the work they do by visiting their website


RNIB, the Royal National Institute of Blind People, is the UK's leading sight loss charity. They offer practical and emotional support to blind and partially sighted people, their families and carers. They raise awareness of the experiences of blind and partially sighted people and campaign for change to make our society more accessible for all. You can find out more about them on their website 


Sibs is the only UK charity for children and adults who are growing up with or have grown up with a disabled brother or sister.

They provide information, support and training on sibling issues for adult siblings, young siblings, parents and professionals.

More information can be found on their website


Independent Provider of Special Education Advice (IPSEA) offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs and disabilities (SEND). They offer a free advice line, downloadable guides and a tribunal support service. You can find more details on their website

Council for disabled children

Council for disabled children (CDC) have a membership of over 300 voluntary and community organisations and an active network of practitioners from education, health and social care. They believe that every child and young person should enjoy the same rights and opportunities and that every aspect of society should be fully inclusive to disabled children and young people. They provide a collective voice for the rights of children, young people and their families and challenges barriers to inclusion.
For further information on the CDC visit their website

Special Needs Jungle

Special Needs Jungle provides parent led information, resources and articles about children and young people with SEND. You can find information on what they do and how to join their mailing list on their website

Charity choice

Charity Choice provides a Guide to Charities in the UK. Whether you've a general interest in disability charities, or are concerned with a particular area - like charities for disabled children, disabled adults or disability therapy You can find related charities using their search functions

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